Project Description
Identification of the prevalence of fetal alcohol spectrum disorders (FASD) has been a challenge for public health in the United States. Knowing how many children and adults are impacted by this disorder is vital for both clinical treatment and social policy. This project is a feasibility study using both qualitative and quantitative methods to explore factors that may support better identification of affected individuals. Two sites, Atlanta and Minneapolis, are cooperating with the Centers for Disease Control and Prevention to explore the characteristics of data associated with the diagnosis of FASD in clinical data and in large publicly available data sets.
Quick Facts About the FASD Surveillance Study
- Several types of data are being explored: clinical records, qualitative interviews and large publicly available data sets, like those available from Medicaid and HCUP.
- Our goal is to identify characteristic patterns associated with FASD DX
- We hope to identify challenges and opportunities to better understand how future surveillance can be improved.
Funding
This project is funding by the Centers for Disease Control and Prevention (CDC). It is being carried out in Atlanta and Minnesota. The Atlanta site is located in the Department of Psychiatry and Behavioral Sciences, Emory University School of Medicine. Our partners in Atlanta are at the Andrew Young School of Policy Studies, Georgia State University and Mathematica.
Investigators
Principal Investigators
- Claire D. Coles, PhD, Emory University School of Medicine
- Julie A. Kable, PhD, Emory University School of Medicine
Co-Investigators
- Hannah Cooper, ScD, Rollins School of Public Health, Emory University
- Angela B. Synder, MPH, PhD, Georgia Health Policy Center, Andrew Young School of Policy Studies Georgia State University
- Brandon Attell, PhD, Georgia Health Policy Center, Andrew Young School of Policy Studies Georgia State University
- Amanda Markovitz, ScD, Mathematica
- Priya Shanmugam, PhD, Mathematica
- Amanda Kudis, MPH, Mathematica