Information and Resources on the Internet
www.als.emory.edu
Emory ALS Center website. You can learn about Emory’s ALS Center here as well as access resources and information about ALS.
www.alsgeorgia.org
ALS United of Georgia focuses on information, research, care, and support for patients with ALS and partners with the Emory ALS Center to support our clinic and our research program. You will find accurate information here and learn about what programs might be available to help. ALS United of Georgia provides a thorough explanation of what ALS is and what symptoms might be expected. This can be a useful website to share with family and friends who are trying to understand ALS. 1-888-636-9940.
www.alsa.org
The national ALS Association (ALSA) focuses on information, research, care, and support for patients with ALS. This organization partners with the Emory ALS Center to support our clinic and our research program. You will find accurate information at this site. ALSA provides a thorough explanation of what ALS is and what symptoms might be expected. This can be a useful website to share with family and friends who are trying to understand ALS. 1‐888‐636‐9940.
www.alsuntangled.org
ALSUntangled reviews alternative and off label treatments with the goal of helping people with ALS make informed decisions about them. The reviewers are all ALS clinician scientists.
www.cdc.gov/als
National ALS Registry
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States. Registering and taking the surveys can help make a difference in the lives of those living with ALS today and for generations to come. Enroll at: www.cdc.gov/als
www.clinicaltrials.gov
This is a federally mandated website where all clinical trials must be posted. This is the most reliable resource for information about ALS research (or research into any medical condition). We suggest searching using the term “amyotrophic” since searching ALS will give you any medical condition where those letters are next to each other.
www.mda.org/disease/amyotrophic-lateral-sclerosis
The Muscular Dystrophy Association (MDA) has been a supporter for care and research in ALS along with other neuromuscular diseases. You will find accurate information here and learn about what programs might be available to help. MDA covers ALS as one of the 43 types of muscle debilitating conditions they cover. MDA has a National Resource Center where trained professionals can help provide information and respond to questions associated with ALS. They will help you identify local and national resources as well.
www.neals.org
The Northeast ALS Consortium (NEALS) is committed to translating scientific advances into new treatments for people with ALS. They are committed to the principles of open scientific communication, peer review, full and open disclosure of potential conflicts of interest and democratic governance of the organization. NEALS started in 1995 with nine academic centers in New England and has grown to over 100 research centers in North America. This website is a reliable and accurate source of information.
www.theaftd.org
The Association for Frontotemporal Degeneration (FTD) strives to improve the quality of life of people affected by FTD and drive research to a cure. FTD is sometimes experienced by people with ALS (pALS).
www.youralsguide.com
Your ALS Guide is developed by patients, families, and friends who want to provide a clear, practical guide for anyone facing ALS. They specifically have a guide for newly diagnosed patients: https://www.youralsguide.com/newly-diagnosed.html