Resources for Professionals

• GNO-METAB Listserv (formerly known as PNO-METAB Listserv) for Genetic Metabolic Dietitians 
  The purpose of the GNO-METAB listserv is to facilitate communication between metabolic nutritionists in the hope of fostering professional development as well as improving the delivery of nutrition care to the inborn errors of metabolism patient population. It is expected to be used as a global resource for dieticians seeking advice regarding the medical nutrition therapy of inborn errors of metabolism patients.

• Books, Media, and Programs for Clinics
  Find books, media, and programs, including:
  • Genetic Disorders Fact Sheets for Parents
  • PKU Quick Reference Guide, MSUD Quick Reference Guide
    • Great quick references for a wide variety of foods. $10 US suggested donation per booklet. Donations will benefit the Singh Genetic Metabolic Nutrition Research Fund. Please contact us to place an order.
  • Southeast Regional Network (SERN) Consumers Group
  • Metabolic Camp

Palynziq and PKU - Treatment impacts on diet quality, neurological health, nutritional status, and the metabolome. 

• Nutrition Management Guidelines Portal - Management Guidelines cover the evaluation and management of patients known to have a particular condition. SERN and GMDI partnered to develop nutrition management guidelines based on our rigorous DNDF methodology. The resulting guidelines are made freely available on this portal.

• Electronic Genetic Nutrition Academy (eGNA)
  Electronic Genetic Nutrition Academy (eGNA) is a web-based system created in 2017 that consists of free educational modules with the goal of increasing global clinical and nutritional management knowledge about inherited metabolic disorders (IMDs) among genetic metabolic dietitians and other health professionals and translate this knowledge to inform patient care. Currently, Case Conferences, Journal Clubs, and Medical Commentaries are offered 3 times a year. Registration is required.
• eGNA’s Genetic Nutrition ECHO (Project ECHO) 
  Our eGNA team is expanding case-based learning using Project ECHO (Extension for Community Healthcare Outcomes), an all-teach-all-learn collaborative model to enhance medical education and care management by linking local providers with specialist care teams and to deliver quality treatment to patients with genetic nutrition disorders. By the end of 2020, we will launch a case-based virtual learning program to telementor genetic metabolic providers. The cost is free.