Publications

• Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines.
  J Cyst Fibros Volume: 24 Page(s): 224 - 235
  03/01/2025 Authors: Dellon EP; Allada G; Allgood SJ; Georgiopoulos AM; Goggin JL; Hadjiliadis D; Lowman JD; Madge S; Middour-Oxler B; Muirhead C
• Validation of the Integrated Palliative Care Outcome Scale (IPOS) in adults with cystic fibrosis.
  Pediatr Pulmonol Volume: 59 Page(s): 2857 - 2866
  11/01/2024 Authors: Georgiopoulos AM; DiFiglia S; Seng EK; Portenoy R; Chaudhary N; Wei R; Berdella MN; Friedman D; Kier C; Linnemann RW
• Palliative care needs among outpatient adults with cystic fibrosis: Baseline data from the Improving Life with CF trial.
  J Cyst Fibros Volume: 23 Page(s): 804 - 810
  07/01/2024 Authors: DiFiglia S; Georgiopoulos AM; Portenoy R; Seng E; Berdella M; Friedman D; Kier C; Linnemann RW; Middour-Oxler B; Walker P
• Variability in qualifications for principal investigator status in research studies by nurses: A call for clarification.
  J Pediatr Nurs Volume: 68 Page(s): 18 - 23
  01/01/2023 Authors: Nasr AS; McCarthy AM; Manworren RCB; Sorce LR; Ersig AL; Hinderer KA; Calamaro C; Gettis MA; Hanrahan K; Hayakawa J
• Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences.
  J Patient Exp Volume: 10 Page(s): 23743735231161486
  01/01/2023 Authors: Basile MJ; Dhingra L; DiFiglia S; Polo J; Portenoy R; Wang J; Walker P; Middour-Oxler B; Linnemann RW; Kier C
• Formal vs. informal transition in adolescents with cystic fibrosis: A retrospective comparison of outcomes.
  J Pediatr Nurs Volume: 62 Page(s): 177 - 183
  01/01/2022 Authors: Middour-Oxler B; Bergman S; Blair S; Pendley S; Stecenko A; Hunt WR
• "Acquiring the Skills Needed to Communicate What Is in Our Teams' Heart: Love, Compassion and Partnership": Qualitative Analysis of Intact Multidisciplinary Teams' Experience of Relationship-Centered Communication Training.
  J Patient Exp Volume: 9 Page(s): 23743735221103025
  01/01/2022 Authors: Middour-Oxler B; Hirschmann K; Chace C; Collins L; Gordon C; Mann M; Swope C; George C
• Caring for Adults With Autism Spectrum Disorder in the Emergency Department: Lessons Learned From Pediatric Emergency Colleagues.
  J Emerg Nurs Volume: 47 Page(s): 384 - 389
  05/01/2021 Authors: Brasher S; Middour-Oxler B; Chambers R; Calamaro C
• Decreased Wait Time and Increased Satisfaction With Bedside Pancreatic Enzyme Dosing for the Inpatient Adolescent With Cystic Fibrosis: A Quality Improvement Project Comparing Enzyme Self-Administration to Nurse Administration.
  J Patient Exp Volume: 8 Page(s): 2374373520981490
  01/01/2021 Authors: Middour-Oxler B; Gettis M; Dye B
• Transition Planning for Chronic Illnesses in the Time of COVID-19.
  J Patient Exp Volume: 7 Page(s): 848 - 850
  12/01/2020 Authors: Hunt WR; Linnemann RW; Middour-Oxler B
• SHAPING TRANSITION PROGRAM COMPONENTS WITH PRE-TRANSITION AND POST-TRANSITION SURVEY RESULTS TO INCREASE PARTNERING
  Volume: 54 Page(s): S396 - S397
  10/01/2019 Authors: Middour-Oxler B; Blair SD; Hunt WR
• LUNG TRANSPLANT PERCEPTIONS AND PREFERENCES OF INDIVIDUALS WITH CYSTIC FIBROSIS AND THEIR CAREGIVERS
  Volume: 54 Page(s): S472 - S472
  10/01/2019 Authors: Middour-Oxler B; Blair SD; Hunt WR
• LISTENING TO THE VOICE OF EXPERIENCE: LESSONS FROM POST-LUNG TRANSPLANT INDIVIDUALS WITH CYSTIC FIBROSIS
  Volume: 54 Page(s): S471 - S471
  10/01/2019 Authors: Blair SD; Middour-Oxler B; Sinha CB; Hunt WR
• A RETROSPECTIVE COHORT STUDY EXPLORING ANXIETY AND DEPRESSION IN INDIVIDUALS WITH CYSTIC FIBROSIS UNDERGOING PEDIATRIC TO ADULT CARE TRANSITION
  Volume: 53 Page(s): 432 - 432
  09/01/2018 Authors: Blair SD; Hunt WR; Middour-Oxler B
• PROSPECTIVE ASSESSMENT OF TRANSITION ANXIETY AND SELF-PERCEIVED READINESS IN A LARGE CF CENTER
  Volume: 52 Page(s): S508 - S508
  09/01/2017 Authors: Middour-Oxler B; Blair SD; Pendley S; Crews BM; Walker SD; Stecenko A; Hunt WR
• PAST, PRESENT, AND FUTURE DIRECTIONS OF A MULTI-SITE TRANSITION PROGRAM FOR ADOLESCENTS WITH CYSTIC FIBROSIS
  Volume: 52 Page(s): S507 - S507
  09/01/2017 Authors: Middour-Oxler B; Blair SD; Pendley S; Crews BM; Stecenko A; Hunt WR
• PARTICIPATION IN A FORMALIZED CF TRANSITION PROGRAM IS ASSOCIATED WITH DECREASED PULMONARY EXACERBATIONS
  Volume: 52 Page(s): S508 - S508
  09/01/2017 Authors: Hunt WR; Bergman S; Middour-Oxler B
• A RETROSPECTIVE SURVEY OF PATIENT EXPERIENCE WITH PEDIATRIC TO ADULT TRANSITION OF CF CARE
  PEDIATRIC PULMONOLOGY Volume: 51 Page(s): 477 - 478
  10/01/2016 Authors: Middour-Oxler BJ; Bergman S; Blair SD; Pendley S; Crews B; Siragusa A; Walker SD; Stecenko A; Hunt WR