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Profile

Ami Rosen

  • Department of Human Genetics
    Assistant Professor
  • (404) 778-8536
  • arosen3@emory.edu
  • Emory GCTP
  • 1462 Clifton Rd
    Suite 310
Head shot of Ami Rosen

Overview

Ms. Rosen is an Assistant Professor in Human Genetics & Neurology in Emory Universitys School of Medicine. She graduated with a Masters in Genetic Counseling from Mount Sinai School of Medicine in 2000 and is currently a board certified and GA licensed genetic counselor.

Ms. Rosen has over 20 years of experience working as a clinical and research genetic counselor focusing on neurological and genetic disorders. She is the Clinical Director for the HDSA Center of Excellence for Huntingtons Disease at Emory University and provides the genetic counseling for symptomatic patients and asymptomatic individuals at risk for Huntingtons Disease. She is also the Associate Director for Emory Universitys Genetic Counseling Training Program. In her role with the Program, she teaches the first year's full year Theory & Practice course, three semesters of Research Seminar courses, and the second year's bioethics course, acts as Research Focus Advisor and Academic Advisor to one third of the programs students, and is a clinical supervisor for the Adult Neurology clinical rotation. Also, she is typically a Focus Mentor to at least one student per annual cohort. Lastly, Ms. Rosen has been a research coordinator for gene therapy trials, enzyme replacement trials, other clinical studies for lysosomal storage diseases, skeletal dysplasias, and neurologic diseases and provides clinical genetic counseling services for these populations.

Research Interests
Huntingtons Disease and other movement disorders
Utilization of genetic services
Reproductive education in families affected by movement disorders

Areas of Specialization
Genetic Education
Neurogenetics, including Huntingtons Disease
Hypophosphatasia
Lysosomal Storage Diseases

Professional Memberships
National Society of Genetic Counselors (NSGC), 1998-present
American Board of Genetic Counseling (ABGC), 2002-present
Southeastern Regional Genetics Group (SERGG), 2003-present
Georgia Association of Genetic Counselors (GAGC), 2012-present

Honors and Awards
ONE award, an honor for significant contributions to Emorys Neurology Department, 2007
Paul M. Fernhoff Excellence in Teaching Award, 2019

Academic Appointment

  • Assistant Professor, Human Genetics & Neurology, Emory University School of Medicine

Education

Degrees

  • MS from Mount Sinai School of Medicine

Research

Publications

  • Benefits, limitations, and impacts of reproductive carrier screening and telehealth-based genetic counseling for individuals with an increased chance to have a child with agenetic condition.
    J Genet Couns Volume: 34 Page(s): e70002
    06/01/2025 Authors: Hardy MW; Bruder K; Rosen A; Ali N; Laney D; Moore RH; Rose E; Sun Y; Grinzaid KA
  • Qualitative assessment of primary care providers' attitudes toward genetic services and genetics education.
    J Community Genet Volume: 16 Page(s): 131 - 137
    04/01/2025 Authors: Kenneson A; Thornton Y; Cole C; Iyer S; Rosen AR; Singh RH
  • Patient experiences of receiving a diagnosis of hypermobile Ehlers-Danlos syndrome.
    Am J Med Genet A Volume: 194 Page(s): e63613
    08/01/2024 Authors: Wang Y-T; Jahani S; Morel-Swols D; Kapely A; Rosen A; Forghani I
  • Very-Long-Chain Acyl-CoA Dehydrogenase Deficiency: Family Impact and Perspectives.
    Int J Neonatal Screen Volume: 9
    10/06/2023 Authors: Crawford S; Sablon E; Ali N; Rosen AR; Hall PL; Neira Fresneda J
  • Validation of a suspicion index to identify patients at risk for hereditary angioedema.
    J Allergy Clin Immunol Glob Volume: 2 Page(s): 76 - 78
    02/01/2023 Authors: Shams M; Laney DA; Jacob DA; Yang J; Dronen J; Logue A; Rosen A; Riedl M
  • Thyroid disease in cervical dystonia.
    Parkinsonism Relat Disord Volume: 107 Page(s): 105274
    02/01/2023 Authors: Kilic-Berkmen G; Scorr LM; Rosen A; Wu E; Freeman A; Silver M; Hanfelt J; Jinnah HA
  • Increased Prevalence of Thyroid Disease in Cervical Dystonia
    Volume: 37 Page(s): S273 - S273
    09/01/2022 Authors: Scorr L; Kilic-Berkmen G; Rosen A; Yeo C; Hanfelt J; Jinnah H
  • Implementation of an automated prediction scoring system to identify patients at possible increased risk for Hereditary Angioedema
    Volume: 149 Page(s): AB42 - AB42
    02/01/2022 Authors: Laney D; Shams M; Jacob D; Yang JJ; Dronen J; Logue A; Rosen A; Riedl M
  • Clinical geneticists' and primary care physicians' responses to hypothetical clinical scenarios
    Volume: 132 Page(s): S346 - S346
    04/01/2021 Authors: Kenneson A; Tina T; Rosen A; Singh R
  • Genetic Referral Patterns and Responses to Clinical Scenarios: A Survey of Primary Care Providers and Clinical Geneticists.
    J Prim Care Community Health Volume: 12 Page(s): 21501327211046734
    01/01/2021 Authors: Truong TK; Kenneson A; Rosen AR; Singh RH
  • Spinocerebellar Ataxia Patient Perceptions Regarding Reproductive Options.
    Mov Disord Clin Pract Volume: 7 Page(s): 37 - 44
    01/01/2020 Authors: Cahn S; Rosen A; Wilmot G
  • Dystonia, Tremor, and Dystonic Tremor
    Volume: 33 Page(s): S350 - S351
    10/01/2018 Authors: Shaikh A; Rosen A; Scorr L; Cotton A; Barbano R; Testa C
  • The Changing Age of Individuals Seeking Presymptomatic Genetic Testing for Huntington Disease.
    J Genet Couns Volume: 27 Page(s): 1157 - 1166
    09/01/2018 Authors: Holman MA; Quillin J; York TP; Testa CM; Rosen AR; Norris VW
  • Dystonia, tremor, and dystonic tremor
    Volume: 123 Page(s): 1515 - 1515
    12/01/2016 Authors: Rosen A; Shaikh A; Jinnah HA
  • Underlying heredity is associated with alcohol responsiveness in dystonia
    Volume: 123 Page(s): 1516 - 1516
    12/01/2016 Authors: Junker J; Brandt V; Weissbach A; Lohmann K; Perlmutter JS; Wright LJ; Rosen AR; Klein C; Jinnah HA; Brueggemann N
  • Clinical and demographic characteristics related to onset site and spread of cervical dystonia.
    Mov Disord Volume: 31 Page(s): 1874 - 1882
    12/01/2016 Authors: Norris SA; Jinnah HA; Espay AJ; Klein C; Brggemann N; Barbano RL; Malaty IAC; Rodriguez RL; Vidailhet M; Roze E
  • The Dystonia Coalition Natural History Project: Seven Years of Progress
    MOVEMENT DISORDERS Volume: 31 Page(s): E4 - E4
    09/01/2016 Authors: Norris S; Perlmutter JS; Wright L; Rosen AR; Comella C; Hallett M; Mink J; Hieshetter J; Kuman K; Jinnah HA
  • Dystonia, tremor, and dystonic tremor
    Volume: 31 Page(s): S537 - S537
    06/01/2016 Authors: Rosen AR; Shaikh AG; Jinnah HA
  • Botulinum toxin treatment failures in cervical dystonia: causes, management, and outcomes.
    J Neurol Volume: 263 Page(s): 1188 - 1194
    06/01/2016 Authors: Jinnah HA; Goodmann E; Rosen AR; Evatt M; Freeman A; Factor S
  • Clinical and genetic features of cervical dystonia in a large multicenter cohort.
    Neurol Genet Volume: 2 Page(s): e69
    06/01/2016 Authors: LeDoux MS; Vemula SR; Xiao J; Thompson MM; Perlmutter JS; Wright LJ; Jinnah HA; Rosen AR; Hedera P; Comella CL
  • Potential mechanisms for low uric acid in Parkinson disease.
    J Neural Transm (Vienna) Volume: 123 Page(s): 365 - 370
    04/01/2016 Authors: Sampat R; Young S; Rosen A; Bernhard D; Millington D; Factor S; Jinnah HA
  • Clinimetric testing of the comprehensive cervical dystonia rating scale.
    Mov Disord Volume: 31 Page(s): 563 - 569
    04/01/2016 Authors: Comella CL; Perlmutter JS; Jinnah HA; Waliczek TA; Rosen AR; Galpern WR; Adler CA; Barbano RL; Factor SA; Goetz CG
  • Diagnostic Delays in Spasmodic Dysphonia: A Call for Clinician Education.
    J Voice Volume: 29 Page(s): 592 - 594
    09/01/2015 Authors: Creighton FX; Hapner E; Klein A; Rosen A; Jinnah HA; Johns MM
  • Development of the Comprehensive Cervical Dystonia Rating Scale: Methodology.
    Mov Disord Clin Pract Volume: 2 Page(s): 135 - 141
    06/01/2015 Authors: Comella CL; Fox SH; Bhatia KP; Perlmutter JS; Jinnah HA; Zurowski M; McDonald WM; Marsh L; Rosen AR; Waliczek T
  • A novel PANK2 gene mutation in a patient with pantothenate kinase-associated neurodegeneration
    Volume: 30 Page(s): S477 - S478
    06/01/2015 Authors: Hatcher-Martin JM; Rosen AR; Factor SA
  • A multiancestral genome-wide exome array study of Alzheimer disease, frontotemporal dementia, and progressive supranuclear palsy.
    JAMA Neurol Volume: 72 Page(s): 414 - 422
    04/01/2015 Authors: Chen JA; Wang Q; Davis-Turak J; Li Y; Karydas AM; Hsu SC; Sears RL; Chatzopoulou D; Huang AY; Wojta KJ
  • Secured web-based video repository for multicenter studies.
    Parkinsonism Relat Disord Volume: 21 Page(s): 366 - 371
    04/01/2015 Authors: Yan L; Hicks M; Winslow K; Comella C; Ludlow C; Jinnah HA; Rosen AR; Wright L; Galpern WR; Perlmutter JS
  • Large-scale meta-analysis of genome-wide association data identifies six new risk loci for Parkinson's disease.
    Nat Genet Volume: 46 Page(s): 989 - 993
    09/01/2014 Authors: Nalls MA; Pankratz N; Lill CM; Do CB; Hernandez DG; Saad M; DeStefano AL; Kara E; Bras J; Sharma M
  • Convergent validity of the revised motor and psychiatric TWSTRS modules of the comprehensive cervical dystonia rating scale (CCDRS)
    Volume: 29 Page(s): S494 - S494
    05/01/2014 Authors: Comella CL; Perlmutter JS; Jinnah HA; Factor S; Waliczek TA; Rosen AR; Galpern W; Goetz CG; Marsh L; Jankovic J
  • Reliability and validity of the revised TWSTRS psychiatric module (TWSTRS-PSYCH) of the comprehensive cervical dystonia rating scale (CCDRS)
    Volume: 29 Page(s): S180 - S181
    05/01/2014 Authors: Zurowski MJ; McDonald W; Comella CL; Perlmutter JS; Jinnah HA; Factor S; Waliczek TA; Rosen AR; Galpern W; Goetz CG
  • Reasons for failure of botulinum toxin treatments in cervical dystonia
    Volume: 29 Page(s): S522 - S522
    05/01/2014 Authors: Rosen AR; Goodman EM; Jinnah HA
  • How long does it take to diagnose cervical dystonia?
    J Neurol Sci Volume: 335 Page(s): 72 - 74
    12/15/2013 Authors: Tiderington E; Goodman EM; Rosen AR; Hapner ER; Johns MM; Evatt ML; Freeman A; Factor S; Jinnah HA
  • The dystonia coalition: Two years of progress
    Volume: 68 Page(s): 80 - 80
    06/15/2013 Authors: Rosen AR; Perlmutter JS; Comella C; Ludlow C; Galpern W; Ferguson J; Yan L; Waliczek T; Harbick S; Jinnah HA
  • The focal dystonias: current views and challenges for future research.
    Mov Disord Volume: 28 Page(s): 926 - 943
    06/15/2013 Authors: Jinnah HA; Berardelli A; Comella C; Defazio G; Delong MR; Factor S; Galpern WR; Hallett M; Ludlow CL; Perlmutter JS
  • Dystonia coalition: The first 2 years of a multicenter study
    MOVEMENT DISORDERS Volume: 28 Page(s): S11 - S11
    06/01/2013 Authors: Perlmutter JS; Yan L; Jinnah HA; Rosen AR; Comella C; Ludlow CL; Galpern WR; Coalition D
  • Family history of dystonia among subjects recruited by the dystonia coalition
    Volume: 28 Page(s): S26 - S26
    06/01/2013 Authors: Rosen AR; Yan L; Perlmutter JS; Jinnah HA
  • Prevalence of tremor among subjects recruited by the dystonia coalition
    Volume: 28 Page(s): S26 - S26
    06/01/2013 Authors: Rosen AR; Yan L; Perlmutter JS; Jinnah HA
  • Development of a comprehensive cervical dystonia rating scale
    MOVEMENT DISORDERS Volume: 28 Page(s): S34 - S35
    06/01/2013 Authors: Comella CL; Stebbins GT; Zurowski M; Jinnah HA; Perlmutter JS; Waliczek TA; Rosen AR; Galpern W
  • The Dystonia Coalition: Three years of progress
    Volume: 27 Page(s): S344 - S345
    06/01/2012 Authors: Rosen AR; Perlmutter JS; Comella C; Ludlow C; Hallett M; Galpern W; Ferguson J; Yan L; Waliczeck T; Harbick S
  • Paraoxonase-1 polymorphisms in Alzheimer's disease, Parkinson's disease, and AD-PD spectrum diseases.
    Neurobiol Aging Volume: 33 Page(s): 204.e13 - 204.e15
    01/01/2012 Authors: Wingo TS; Rosen A; Cutler DJ; Lah JJ; Levey AI
  • Disease-related and genetic correlates of psychotic symptoms in Parkinson's disease.
    Mov Disord Volume: 26 Page(s): 2190 - 2195
    10/01/2011 Authors: Factor SA; Steenland NK; Higgins DS; Molho ES; Kay DM; Montimurro J; Rosen AR; Zabetian CP; Payami H
  • Postural instability/gait disturbance in Parkinson's disease has distinct subtypes: an exploratory analysis.
    J Neurol Neurosurg Psychiatry Volume: 82 Page(s): 564 - 568
    05/01/2011 Authors: Factor SA; Steenland NK; Higgins DS; Molho ES; Kay DM; Montimurro J; Rosen AR; Zabetian CP; Payami H
  • Evidence for association of high-dose levodopa therapy with intellectual and psychiatric complications of Parkinson's disease
    Volume: 15 Page(s): S119 - S119
    12/01/2009 Authors: Hamza T; Factor S; Molho E; Montimurro J; Pratt D; Rosen A; Higgins D; Payami H
  • Variant in the sequence of the LINGO1 gene confers risk of essential tremor.
    Nat Genet Volume: 41 Page(s): 277 - 279
    03/01/2009 Authors: Stefansson H; Steinberg S; Petursson H; Gustafsson O; Gudjonsdottir IH; Jonsdottir GA; Palsson ST; Jonsson T; Saemundsdottir J; Bjornsdottir G
  • Prevalence of vitamin d insufficiency in patients with Parkinson disease and Alzheimer disease.
    Arch Neurol Volume: 65 Page(s): 1348 - 1352
    10/01/2008 Authors: Evatt ML; Delong MR; Khazai N; Rosen A; Triche S; Tangpricha V
  • A single nucleotide polymorphism (SNP) at DBH is associated with Alzheimer disease in European-American subjects
    Volume: 63 Page(s): 92S - 92S
    04/01/2008 Authors: Tang Y; Lah J; Rosen A; Levey A; Cubells JF
  • High prevalence of vitamin D deficiency in a Parkinson's disease (PD) cohort
    Volume: 70 Page(s): A107 - A107
    03/11/2008 Authors: Evatt ML; DeLong M; Khazai N; Rosen A; Triche S; Tangpricha V
  • Clinical and genetic predictors of freezing of gait and falling in Parkinson's disease (PD)
    Volume: 23 Page(s): S44 - S44
    01/01/2008 Authors: Factor SA; Steenland NK; Higgins DS; Molho ES; Montimurro JS; Rosen AR; Kay DM; Zabetian CP; Payami H
  • Evidence of shared risk for Alzheimer's disease and Parkinson's disease using family history.
    Neurogenetics Volume: 8 Page(s): 263 - 270
    11/01/2007 Authors: Rosen AR; Steenland NK; Hanfelt J; Factor SA; Lah JJ; Levey AI
  • A genetic risk factor for periodic limb movements in sleep.
    N Engl J Med Volume: 357 Page(s): 639 - 647
    08/16/2007 Authors: Stefansson H; Rye DB; Hicks A; Petursson H; Ingason A; Thorgeirsson TE; Palsson S; Sigmundsson T; Sigurdsson AP; Eiriksdottir I
  • Essential tremor phenotyping and molecular genetics: ET database cases and a new large pedigree
    Volume: 21 Page(s): 1556 - 1556
    09/01/2006 Authors: Rosen AR; Levey AI; Bouzyk M; Wichmann T; Factor SA; Testa CM
  • Essential tremor phenotyping and molecular genetics: Database cases and a new large pedigree
    Volume: 21 Page(s): S405 - S405
    01/01/2006 Authors: Testa CM; Rosen AR; Wichmann T; Levey AI; Bouzyk M; Factor SA
  • 10 most commonly asked questions about genetic testing.
    Neurologist Volume: 10 Page(s): 107 - 109
    03/01/2004 Authors: Rosen AR
  • Attitudes of pediatric residents toward ethical issues associated with genetic testing in children.
    Pediatrics Volume: 110 Page(s): 360 - 363
    08/01/2002 Authors: Rosen A; Wallenstein S; McGovern MM
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