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Research Updates

Frontotemporal Disorders: Information for Patients, Families, and Caregivers

This new 30 page publication from the National Institute on Aging provides current information on frontotemporal disorders including: behavioral variant frontotemporal dementia (FTD), primary progressive aphasia (PPA), corticobasal syndrome (CBS), and progressive supranuclear palsy (PSP). These rare brain diseases strike middle-aged adults, causing devastating changes in behavior, personality, emotions, language, and movement. This booklet describes what is known about their symptoms, diagnosis and causes. In addition caregivers will find additional resources for coping with these challenging diagnoses. Read and/or order a copy of this booklet at or call toll-free: 1-800- 438-4380.

Emory initiates Frontotemporal Dementia Research Program

William Hu, MD, PhD has joined the Emory University faculty to accelerate the progress of research on FTD and related disorders. He received his advanced degrees and neurology training from Mayo Clinic in Rochester, MN, followed by specialty training in Cognitive Neurology and Translational Research at the Center for Frontotemporal Dementia and Center for Neurodegenerative Disease Research, University of Pennsylvania, PA. His clinical interest involves diagnosing and treating patients with FTD and related illnesses, and his research involves developing accurate tests for these and other conditions including amyotrophic lateral sclerosis (Lou Gehrig’s disease) and Alzheimer’s disease. To schedule a cognitive neurology clinic appointment call 404-778-3444.

Alzheimer’s Association Launchs TrialMatch

The national Alzheimer’s Association has launched a TrialMatch program to link people interested in participating in Alzheimer’s research with studies. Research to find treatments and ultimately cures for Alzheimer’s disease can only progress if people enroll in research studies. The TrialMatch program can be accessed by calling 1-800-272-3900 or online at

Learn More About Alzheimer’s Research

Contact the Emory University ADRC at 404- 728-6950 or email